I decided to ignore this annoying aspect of my life by not blogging for the past year. I have to say it was a relief. I've got a lot going on .
I'll be done with the trial in May of next year. I was a bit disheartened this spring with my MRI results and was hesitant to post, as I would never want to discourage others. And lets face it, I shouldn't be seeing my MRIs. I should be blissfully pill popping for three years awaiting that final grade. Which is better? Discouragement or results anxiety? Of course I have no way of knowing is my results are considered a success or failure as progression of this disease has never been measured via MRI cyst count. So we really don't know if progression has been slowed significantly or not at all. My MRI showed a doubling of cysts on one kidney and a smaller increase on the other. So is Tolvaptan working on one? No one knows. Just like the famous quote about the movie business - "nobody knows anything". You just can't tell if a film will be successful.
I'm meeting with a guy from the PKD foundation at the end of the month. Maybe I'm just misinformed. Wouldn't that be great? Maybe he knows.